We had a scary weekend and a scarier Monday morning. When we got up today, David was disoriented and having trouble getting out his words. He was having trouble holding things like a water bottle or his phone and kept dropping them. He was able to eat and take his meds and I called our primary physician and left a message for a call back. David could not sit upright for long and had to lay down. He was falling asleep. I didn’t hear back from the office, so I decided to just take him there. I just need someone to tell me what was happening. I went in and relayed what was happening and Dr. W wanted us to go to the hospital for a CT scan. I asked if we were supposed to go to the ER and the girl said yes so we went. Walked in to standing room only and chaos. There was no place for him to sit. I tried to explain his condition and was told to complete a form which we didn’t have to do the last time we went with the same issues being a chemo patient. Anyway, I completed the form turned it in and was told to have a seat. I said where? She was on to the next person by then. I found him a seat and went outside to call Dr. W’s office again. I explained what was happening and they told me to go over to the outpatient side and wait and they would call me back. We did and got a call saying the order was ready. We were soon headed to CT and after that was finished, I wasn’t sure what we were supposed to do but I knew I could not take him back home. Something wasn’t right. I went back down to Dr. W’s office where I tried to explain what was happening and I didn’t know what to do and I guess that was just about enough stress for me because I broke down like a child and couldn’t even give her my phone number. She said to go out and wait in the car with him and she would call. Dr. W came out to the car and a nurse took his BP and heart rate. BP normal and heart rate around 112. It had been 129 when he left the house. He is having pain in the upper abdomen area. We battled the high temps at the start of the week and the low temps over the weekend. The confusion was getting worse. Dr. W said he thought he needed to be admitted for more blood so we went back over to outpatient and as we walked in they were already ready for him. Talk about service. We did a few registration forms, and they had us In a room in under 30 minutes. David was getting more disoriented, and I was trying to explain what we were doing. So as of now, we are in a room waiting to get blood. He already had another type match. I haven’t seen the CT results yet, but I am expecting there to be fluid buildup in the 3rd space causing these issues. Not knowing what to do is terrifying. I am grateful for our doctor that can see him and be able to let me know what is happening. I did send a message to Dr. B’s office letting them know what was happening. We should see Dr. W later this evening.
David is always the one that calms me and tells me what to do next. I don’t have that and it is horrible. I have never felt so alone in my life.